1. Down Syndrome Workshops for Siblings Brothers and sisters of those with Down syndrome tend to be compassionate, understanding, wonderful people. But we also know that being the brother or sister of someone with Down syndrome can have its tough times, too! These workshops will guide brothers and sisters through questions like “What is Down syndrome?”; “What do I do if I’m jealous of my brother or sister with Down syndrome?”; or “What will my brother’s or sister’s future look like?” Workshops provide the opportunity for a lot of concerns to be addressed and feelings to be validated. Brothers and sisters will learn they are not alone in their experiences, while gathering some good strategies for how to cope with some difficult times with their brother or sister. It’s a time to learn, grow, and celebrate our community of brothers and sisters! Let’s get started!
taken from https://siblingslearnaboutdownsyndrome.com
It’s 2020, and that means it’s time for the US Census. The 2020 Census will provide a snapshot of our nation’s population, where we live, and so much more. The results are important because the data influences congressional representation, billions in federal funding, business and research decisions, and will impact communities for the next decade. To ensure that the people you support understand and participate accurately in the Census, we are providing the below and attached information from OPWDD describing how the Census will count people with developmental disabilities who live in various residential settings. As a voluntary provider, care coordination organization or care manager, we ask that you also share this information with the people you support who are not being counted as part of a “group quarters” and their families to ensure that they participate directly. Thank you for supporting New Yorkers with developmental disabilities to participate in the 2020 Census.
Information for U.S. Census 2020
This memorandum is to inform all relevant parties of the basic procedures for complying with the 2020 Federal Census.
The completion of the Census every ten years is established in the US Constitution. All census information is treated with the strictest confidence as required by federal law. Because the collection of census information is required by law, relevant information about individuals living in our residences is authorized to be disclosed in accordance with federal HIPAA Privacy Rules and NYS Mental Hygiene Law.
These requests will only concern basic demographic information of the individuals residing in that home and answers should be provided as of the date of the response. If an answer is unknown, please skip it.
Census workers should have proper identification and Staff should never provide any information of a financial nature, or specific confidential information regarding individuals who reside at the location (such as name, diagnosis, treatment, etc.). For more information about common census concerns, please see the attached flyer.
Census workers may be contacting sites identified as “group quarters” in Census Bureau records to gather additional information concerning the residence in preparation for the census. Group quarters include developmental centers, ICFs, and supervised IRAs.
Generally, group quarters will not be individually visited and enumerated by census workers, and instead, all information concerning group quarters will be provided to the Census Bureau centrally by the agency that operates them. This will eliminate the need for census workers to visit each site to gather information. However, if a census worker attempts to obtain information directly from an IRA or other group quarter, whether in person or by mail, staff should comply with the request and provide the requested information. Duplicate information will be eliminated by Census workers.
Family Care Homes
Family Care Homes are not considered group quarters for the purposes of the census and will be treated as other private dwellings. The homeowner will receive a census form in the mail and will be responsible for completing it. Individuals with developmental disabilities residing in Family Care Homes should be included on the census form as a member of the household, along with any other persons living in the home.
Individuals Receiving Services in a Non-Residential Setting
Care Managers should assist individuals receiving services in the community in understanding the purpose of the census, and in successfully completing census materials. Additionally, Care Managers should advise individuals about how to responsibly provide information, pursuant to the attached flyer.
Thank you for your assistance and cooperation in making sure every individual in New York State is counted in the 2020 US Census.
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