- NEW !! Research opportunities for individuals with Down syndrome at MassGeneral Hospital in Boston. Check here for current opportunities:
- DSAHV has elected a new President of the Board of Directors, Courtney McDermott !! Meet the rest of the Board Here.
- Thank you to our community for another fantastic Buddy Walk, made possible with the help of our generous sponsors. Click HERE to see this year's Sponsors.
- A great video of this year's 5th Annual Golf Outing Fundraiser has been posted in our "Gallery and Achievements" Page !
- Research study at Adelphi University School of Social Work seeking mothers of children born with Down syndrome, under the age of six, who were diagnosed after birth. Download Flyer Here.
- NIH launches first national Down syndrome registry. The National Institutes of Health has launched DS-Connect, a Web-based health registry that will serve as a national health resource for people with Down syndrome and their families, researchers, and health care providers. Website Here --> https://dsconnect.nih.gov/
- National Down Syndrome Congress (NDSC) Annual Convention 2013 workshop recordings now available. Fifty-five topics covered. Access to all workshops, which are available online through July of 2014, are available to purchase $45 for NDSC members and $75 for non-NDSC members. A list of the workshops can be found here:
The link to register to listen to them is:
- Continuing Education Classes for adults with developmental challenges now offered through the Successful Learning Center and Orange County Community College. More information can be found on these docuements:
FAQ | Introduction to the SLC | OCC Announcement
- The Developmental Disabilities Lab at Queens College invites parents or caregivers of a school-age child with Down syndrome to participate in a study to evaluate whether a behavior analytic assessment and treatment package will help reduce or alleviate Obsessive-Compulsive Behaviors and teach them more appropriate alternatives. Please see the attached flyer for more details and contact information. Download the Flyer Here.
- Down Syndrome Test - The pamphlet prepared by the National Down Syndrome Congress and the Global Down Syndrome Foundation is for pregnant women who are considering, or who have had, prenatal testing for Down syndrome. It provides important information about prenatal testing and facts about Down syndrome.
- Ablenetinc.com is a resource to find assistive technology products and curriculum solutions. The website contains many valuable tools for those families utilizing technologies such as iPads. There are also many online webinars which provide free instruction on a variety of apps for the iPad.
- Bridgingapps.org was founded by a mother of an eight year old with Down syndrome. The website provides great info regarding the use of iPads for those with developmental challenges and lists some specific apps such as iAdvocate. iAdvocate can provide immediate and specific responses during a CSE meeting when officials try to deny access to services. For example during a district meeting when the school states "the academic gap is too large for your child to be educated in a general ed setting" the App gives a specific response such as " according to the IDEA, discrepancy in cognitive level cannot be the sole determining factor in placement”.
- College Options Nationwide for People with Intellectual Disabilities - Think College
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